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Sitter just nu p\u00e5 \u00d6stra sjukhuset, barnakuten. Matheo ligger i fosterst\u00e4llning och sover tungt bredvid mig. Utslagen. Han ser s\u00e5 liten ut i den stora sjukhuss\u00e4ngen, inlindad i v\u00e5r mysiga filt som inte h\u00f6r hit.<\/p>\n

Min \u00e4lskade lille k\u00e4mpe! Det \u00e4r s\u00e5 or\u00e4ttvist att du ska drabbas av det h\u00e4r. Jag \u00f6nskar att jag kunde byta plats med dig. Ta \u00f6ver din r\u00e4dsla och sm\u00e4rta. Jag k\u00e4nner mig s\u00e5 maktl\u00f6s. Jag kan inte p\u00e5verka det som sker, det ligger helt utanf\u00f6r min kontroll. Det var l\u00e4nge sedan jag f\u00f6rlorade kontrollen \u00f6ver mitt liv och nu har jag gjort det ytterligare.<\/p>\n

Matheo har en historia av otaliga feberkramper. Ikv\u00e4ll fick han sin andra oprovocerade fr\u00e5nvaroattack. Jag var f\u00f6rberedd p\u00e5 att den skulle komma, det var inte fr\u00e5gan om, utan n\u00e4r. Jag har v\u00e4ntat och f\u00f6rberett mig mentalt. Varje dag sedan sist. Det dr\u00f6jde knappt sex veckor innan den ov\u00e4lkomna \u00e5terf\u00f6reningen \u00e4gde rum. N\u00e4r jag allra minst anade det tog den l\u00f6mskt kontrollen \u00f6ver min sons medvetande och kropp. Matheo som i ena sekunden lugnt satt i soffan och tittade p\u00e5 TV med samma filt som han nu ligger nedb\u00e4ddad under f\u00f6rsvann. Han b\u00f6rjade kr\u00e4kas och hans mjuka, sp\u00e4nstiga kropp bytte skepnad och blev stel och leal\u00f6s. \u00d6gonen sp\u00e4rrades upp. Blicken blev tom. Munnen tuggade frenetiskt. Matheo var inte l\u00e4ngre d\u00e4r.<\/p>\n

Innerst inne hoppades jag att det skulle stanna vid en eng\u00e5ngsf\u00f6reteelse. En g\u00e5ng \u00e4r ingen g\u00e5ng som l\u00e4karna s\u00e4ger.<\/p>\n

Fast en g\u00e5ng \u00e4r en g\u00e5ng f\u00f6r mycket. S\u00e4rskilt om man har autism. Med en redan annorlunda hj\u00e4rna l\u00f6per man stor risk f\u00f6r att den blir \u00f6verbelastad. Det \u00e4r ingen tillf\u00e4llighet att epilepsi \u00e4r \u00f6verrepresenterat bland de med autism.<\/p>\n

Jag sitter nu i samma rum och v\u00e4ntar som p\u00e5 ny\u00e5rsafton. Den h\u00e4r g\u00e5ngen hoppas jag p\u00e5 inl\u00e4ggning. F\u00f6rra g\u00e5ngen jag var h\u00e4r fanns det en liten gnutta hopp kvar. Det g\u00f6r det inte l\u00e4ngre. Matheo har epilepsi. Fr\u00e5gan \u00e4r i vilken utstr\u00e4ckning. Nu f\u00e5r de skynda p\u00e5 utredningen. Jag orkar inte v\u00e4nta i m\u00e5nader p\u00e5 tider till barnmedicin. Jag orkar inte v\u00e4nta p\u00e5 EEG-svar som aldrig blir f\u00e4rdiga. Eller f\u00f6r den delen inte visar n\u00e5gon aktivitet. Jag orkar inte v\u00e4nta p\u00e5 att f\u00f6rlora min son. Igen.<\/p>\n

Dela det h\u00e4r:<\/h3>